Wednesday, June 17, 2009

a note from mom-June 17th

This is the latest Email from mom, as Gary was to sick to send one! I was up there w/ the kids over this past weekend, it was the hardest visit we have had yet....for so long it's been easy to forget how sick Gary is, but not this weekend, his body is so tired of the chemo, and the reactions are CRAZY! We were told on Sunday that the transplant might not happen, which was hard for all of us to hear...but they have decided to go forward! We are all standing with full confidence that God is in control and that is allowing us to move forward w/o the fear of what will happen next! Pray that Gary and mom will continue to have this amazing strength that will carry them through! I'll be headed up again this weekend for the transplant and a few days after...pray for Alex (who has been more than understanding) and my big kids as they stay home. Gary won't be able to see any kids for a good while, so they can't go. Eli and Morgan will be hanging out at the hotel....but not around Gary...w/ me. THANK YOU Morgan, you are a lifesaver!! I don't know what I would of done w/o you through this process! Love you girl!



Dear Friends of Ours,

The last few days have been something else. Yesterday after Gary had his lab work, and the blood cultures and x-rays had all come back negative, and since his white count had nadared (was the lowest it has been) it was decided that we would continue on with the transplant. As a result of reoccuring fever spikes, it was also decided that the Hickman "central" line would be pulled and replaced with a catheter that would be placed in his left (bracial) arm.

After receiving three different antibiotics and phosphorus, the central line was removed. We were then sent to the hospital to the 9200 unit where the new "power pick" line would be put in. Because it was so late in the day and the shift changes, we ended up staying overnight at the hospital.

The woman who was to put in the line was preparing Gary and telling us all that could of and should of information...literally too much information. (in my opinion) Fortunately she was very experienced, no we were once again very blessed to benefit from her experience. While she was setting up and getting ready to perform this procedure, I asked if it would offend her if we prayed. We prayed and asked God to reveal Himself to us, that we might sense His presence. We asked that He might guide and direct her hands allowing the catheter to be directed exactly where it was suppose to be. We once again praised God because not only did the line go in very easily but the woman said "that line went in as smooth as molasses." Isn't God amazing.

We returned to the Bone Marrow Clinic this morning at 8:00 and after lab work and antibiotics Gary recieved the first of his preparation chemo. His body reacted to the Campath (chemo) and he had a very rough afternoon. Of course, as always, the nurses were right on top of things. Tonight he is extremely tired, (actually we both are) but he is feeling better than earlier today.

I do not have a scripture to share with you today but I do want you to know that God is so faithful. I must admit to you that Sunday afternoon I was so disappointed that I cried most of the afternoon. As I now look back I am so ashamed that I allowed my doubts and fears to rob me of my joy. I love my heavenly Father with all that is in me. Once again we searched the scriptures for courage and strength to be prepared for God's direction He would determine through our medical team. I know in my heart God is always in control and he never waste our pain, suffering or difficult life situations. He uses all of these circumstances to conform us and to draw us to Himself. I am so thankful He really knows my heart and my desire to become all that he has chosen for me to be. I am just sad that I stumbled on my disappointment.

We truly do appreciate your continued prayer support. These next few weeks will be critical. Please pray for Gary's endurance and success of his transplant. As we pray for God's will together, please know you are loved and we are asking God to pour out his love and blessings on you and yours.

Experiencing His Grace...God's Grace,
Love to all,
Shirley (Gary will write soon!)

1 comment:

dawn said...

thank you for sharing this update. i will be praying for you and your family {while you are away from them} and most certainly will be praying for you mom and Gary.